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Wednesday, March 17, 2010

Let's Get This Show on the Road!

Well, our oncology appointment for Tuesday was put off until this morning at 10:15 due to the fact that Dr. Maisel had not gotten the results from tests he had sent to the Mayo Clinic back yet. So yesterday turned out to be just a "hang-out" type of day and then we went last night for the steak dinner we never got to have before all this started! It was so good! It had been years since we indulged so and afterward we came home and watched "our shows" (Biggest Loser and Parenthood--tonight we catch up on AI and get to watch the results show right after that--gotta love DVR)!

So this morning we went to the Dr. appointment, only to find out that they still didn't have these results back! Ugh! Dr. Maisel said it's impossible to rush them as much as he'd love to, but that we also want them to be correct. We totally get that. Now he thinks Friday is the day they will shoot for them being finished.

However, he's as tired of waiting around as we are, knowing how aggressive this is and that Eric's neck could start growing even larger at any moment, thus impacting his ability to breathe (kind of important!). So tomorrow, we are going ahead and starting a cycle of chemotherapy called R-CHOP that is mostly for the Large B Cell diagnosis. He said it won't hurt, even if we have to switch over to the drastically different treatment for Burkitt's in the next few days, as it includes several of the drugs he would need for Burkitt's anyway.

If we get to stay on R-CHOP (with the Large B Cell diagnosis), it will be one infusion every 21 days and we do that 6 times. Wow. That's the lesser of the two evils and the best we can hope for. Burkitt's is quite more involved and requires several days of a different type of chemo in a row, then a week in the hospital for more drugs and spinal tap chemotherapy, then a week at home--and doing this cycle 3 times. Not so fun.

So here we are, about to "get this show on the road"! Eric dropped me off here at the house this afternoon, while he is going to work the rest of the day and plans on working all day Friday. This morning, not even 10 minutes before we left for Dallas, he was in the back yard, killing weeds. He is strong and completely willing and ready to fight, as long as there are a few more steak dinners along the way!

I'll update soon and I may even throw a card in the mix here in the next few days! Keep thinking those happy thoughts, ya'll!
sus

19 comments:

  1. Thank you for the update. I can't even imagine what kind of pins and needles you are on -the waiting. Friday will be here soon enough. I am praying for you both. My heart and soul is hoping for the best. Love and strength to you, michelle

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  2. Thanks so much for the update! We WILL keep thinking happy thoughts, hoping all goes well! {{{Hugs!}}}

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  3. Thank you for updating us on your husband. I am continuing to keep you both in prayers. God bless you both.

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  4. I know that you don't have a definite diagnosis, but if it will make you feel any better my FIL was diagnosed about a year ago with Large-B Cell lymphoma. He immediately started chemo and within six months was declared cancer free :) I hope your husband has the same good fortune. You, your husband and your family are in my thoughts and prayers.

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  5. Lots of love and positive thoughts heading your way girl!! Just know I'm thinking of you and wishing I could do more. (Maybe you guys will need a Maui vacation to celebrate Eric's victory when all this is over!?!?)

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  6. You guys are in my prayers. Have been down this road with family member more times than I want to count. Indeed a very scary thing. Be sure and take time for yourself throughout the process, as that is important to your health and well being.

    XOXOXOXOXOXO
    Beverly

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  7. Hi.. I have been following your blog for awhile now and I am so sorry about your husband. My husband just got diagnosed with a rare cancer called leiomyosarcoma. he has a 5 inch tumor in his abdomen. We meet with the oncologist tomorrow. We will probably get a 2nd opinion at MD Anderson in Houston... we are very scared and nervous, but trying to stay positive. Best of luck to you and your husband!!

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  8. Just want you to know I'm thinking of you all and wishing for the best. Big hugs!

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  9. Susan I am glad I came across your blog; I just want you and your family to know that me and my family are praying for you all...Love ya! The Thomas family from Tallahassee, Fl.

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  10. you are all so very brave, I cant start to imagine how it must be for you all, sending good vibes and well wishes. I hope this journey is as quick and painless as possible and that once its over you can all enjoy some much needed good times together x

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  11. Thoughts and prayers...for you and your husband.

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  12. I am sure it will be tough, chemo is not fun. Thoughts and prayers with you!!

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  13. Thinking of you and your family. Hope all of you keep a positive attitude and remember there are lots of prayers and positive thoughts coming your way!
    Diana Bell

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  14. I don't know you at all, but I empathize with your struggle. Your blog has been a favorite of mine for many months, but I don't think I've ever left a message. Shame on me. Sending best wishes for strength and courage. Keep on blogging. It helps, me, too. We have a similar struggle.

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  15. sending happy thoughts and lots of prayers your way.

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  16. PRAYERS!!!!! It's Friday and am just checking my emails!!!!!

    Ummmm, STEAK!!!! :)~

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  17. Thinking of you and your hubby, Susan! Hope that you get some clear answers soon and can move forward. Keeping you in my heart and prayers! Hugs!

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  18. Love and prayers your way, dear!

    Hugs,
    Amy

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  19. Susan, you sound upbeat and positive...absolutely the best way to fight your battle! I'm one of your online followers who is wishing you the very best in the weeks and months to come. This is a "beatable" cancer and your young, strong husband sounds like a perfect candidate to do just that.
    Carry on...with your chin up!...and many online friends will be praying for you and your DH.

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